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connor story
Connor was a normal happy go lucky 2 year old full of life and always on the go.

In Febuary of 2005 he was admitted to Alder Hey Childrens Hospital for an emergency MRI scan following a few weeks of ENT investigation. We were told that he had a brain tumour and the only option was to operate. Without immediate surgery he would not survive a further 7 days. We went ahead with the operation on the 23rd   February just five days after the life shattering news. The staff at the hospital were all fantastic.
After the operation we played the waiting game. Connor began to get better he was a real fighter and everything looked positive. He wanted to play even after all he had been through and was desperate to talk but due to complications a trachi had been fitted and he was unable to talk. Despite this he could communicate very well in his own way, he always managed to get across what he wanted to say. We were told that Connors tumour was a very rare incurable childhood ATRT tumour on the 17th March. The doctors told us that we had very little time left and that he could die at any time. We took Connor home immediately to make his final few weeks as happy and normal as possible.

He was fanatical about motorbikes, Noddy and Firemen so we spent all our time playing and even managed to get a real fireman to come and see him. He had a happy final few weeks, but lost his very short battle on the 6th May 2005 only 11 weeks after we were told of the tumour.
We wanted Connors Life to be remembered by everyone involved with him and his memory to live on. We decided we wanted to try and help find a cure for this terrible tumour so that no family experiance what we have. The Doctors on the oncology unit told us about SDBTT and we thought it was fantastic that his name could be used in such a positive way.